Posted by: menotmd | July 15, 2009

Lupus- autoimmune doesn’t mean that you are automatically immune…

So earlier during this month, I was a bit lazy and decided to just write down the links which were researched by Mary Wickline (Thanks Mary!) in the latest issue of MLA News (yes, us med librarians are good for something and don’t confuse us with the Modern Language Association — we are the Medical Librarians Association and damn proud to be associated with each other!). Now I have time, I finished classes and told my day job that I needed some time to get back to sanity and perused through my old med textbooks to get you a more meaningful blog entry about Lupus. The links on this post are all live.

Before I tell you just exactly what is Lupus, I am going to construct who this might affect:

If you got it, you’ll probably be a woman. If you got it and got it real bad (or severe) — you’ll probably be a black woman. You’ll also probably be in your 20s or 30s, although you might get it in childhood or in your later years. As for men, you aren’t saved. You just don’t have a high prevalence or a high certainty of diagnosis as do women.

Now what exactly is Lupus?

While I inject some humor in my title of autoimmune doesn’t mean that you automatically have immunity, the nature of this illness is serious. It is called autoimmune, because auto, I guess, means “self” in latin and therefore, you are immune to yourself. Yeah, so you know all those cells (helper T cells and B cells) in your body that helps you fight infections? Well, for whatever reason (and it is literally for whatever reason because the etiology or cause is unknown) those cells think that your organs or structures in your bodies are the infections and attack those entities. Those entities can range from your central nervous system (meaning the brain and spinal cord) to your kidneys. It can get your joints, your heart and your blood.

So in keeping with epatientdave’s question: “What is your next move?” I’ve been lucky enough to have MLA News come out with a piece from Mary Wickline, UCSD about Internet Resources on Lupus (I’ll try to get y’all these as my peeps put them out).
Alliance for Lupus Research (ALR)
Immune Tolerance Network (ITN)
LUPUS: An International Journal (This one might require a subscription, but if you have the time, do a search and go to your local library and they will get you the articles – yes, we are good like that ;>)
Lupus Foundation of America (LFA)
Lupus Research Institute (LRI)
MedlinePlus: Lupus
US Centers for Disease Control and Prevention: Arthritis: Types – Overview: Systemic Lupus Erythmatosus
US National Institute of Arthritis and Muscoloskeletal and Skin Diseases (NIAMS): Handout on Health: SLE
US National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC): Lupus Nephritis

While this information might not help you figure out your next move, you will certainly know where you are…

Good Luck.

I got it from MLA NEWS, June/July 2009. Oh and Patricia Weiss helped Ms. Wickline edit it.


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s


%d bloggers like this: